NAPS Data
NAPS began collecting longitudinal, comprehensive clinical data and biomarkers in 2018, at 10 sites, on a large cohort of participants with polysomnogram-confirmed idiopathic RBD. Baseline characteristics and overview are available in this publication.
Information about the NAPS RBD cohort will be updated periodically.
NAPS is dedicated to providing data and biological samples to qualified researchers. Submit your request for data/samples and review our data sharing policy by clicking the links below.
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Data Request
The form is designed to facilitate the sharing of data and biospecimens among researchers while ensuring compliance with ethical standards and regulations. It also helps streamline the approval process, fostering collaborative research and promoting transparency in the scientific community.
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Data Sharing Poilicy
The goals of the project can be best achieved through collaborative and open access to data and biospecimens, while respecting the intellectual contributions of principal- and co-investigators. This document presents the policy for access to data, access to biospecimens, and publications.
Forms for NAPS Sites
Available to NAPS personnel only.
NAPS Data and Samples, as of 7/31/2024
| NAPS1 | NAPS2 | Total NAPS1 + NAPS2 |
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|---|---|---|---|
| Clinical Visit | 607 | 527 | 1,134 |
| Polysomnogram | 218 | 257 | 475 |
| Cerebrospinal Fluid | 62 | 117 | 179 |
| Blood / DNA | 496 | 502 | 998 |
| DaT Scan* | 0 | 144 | 144 |
| Brain MRI* | 0 | 171 | 171 |
*not collected during NAPS1
NAPS Clinical Visits, as of 7/31/2024
| Cycle | Number | Percent | Cumulative |
|---|---|---|---|
| 1 | 185 | 36% | 185 |
| 2 | 147 | 29% | 332 |
| 3 | 99 | 19% | 431 |
| 4 | 57 | 11% | 488 |
| 5 | 26 | 5% | 514 |
As of 7/31/2024,, 514 unique individuals have completed a comprehensive NAPS clinical assessment. Among these participants, 185 have had a single visit, 147 have had two annual visits, and 26 have completed five annual visits.